The cranial sacral treatments we did from December through February helped tremendously, as you noticed in my posts in February. We started the anti-fungals the end of February and everything fell apart. He regressed terribly. His speech didn’t disappear, but he stopped advancing and regressed some and his behavior went downhill – lots of tantrums again, head banging, wanting to be held and carried a lot.
Now we’ve made it to April and he has been off the anti-fungals for
3-4 weeks. He is pretty much back to where he was the middle of
February. We’ve been continuing the cranial sacral appointments all this
time. He’s doing great again. He is gaining speech again and his
behavior is improving. Mondays cranial sacral appointment (Dr. R.) made a
tremendous difference. The appointment Monday was one like I had never
seen before. Jordan went through 3 stages in the appointment. He was
quiet, sullen, and shy at the beginning (fairly normal for recent
weeks). He got a little fussy and cranky when Dr. R tried to
evaluate him and wouldn’t cooperate. Dr. R then held him by his ankles
upside down, which Jordan thoroughly enjoyed. Dr. R would relax his hold
on one leg and then switch, basically his legs looked like he was
walking but upside down. The more he did this you could actually see
Jordan’s range of motion increase and stiffness in his body decrease.
His back and neck arched and extended more each time – a very good
thing. Jordan was okay while upside down and Dr. R did this for a few
minutes. After he put Jordan down, upright, within a few seconds Jordan
was very aggitated, fussying, staying close to the ground instead of
standing and walking, and banged his head on the lightly carpeted floor
twice, hard, a couple minutes apart. After the second head banging, Dr. R
sat Jordan on his lap and worked on Jordan’s skull for quite a while.
When Dr. R was done, Jordan was happy, jovial, and bounced off to play
with the toys in the room. The change in him was amazing! This week, he
has not banged his head once, not even during his tantrums. In fact, I
even saw him start the motion once and stop himself before his head hit
the floor. This is a very encouraging and pleasant change. It was horrible
watching and listening to his head bounce off the floor like a bowling
ball. However, I had long since given up on stopping him. No matter how
many times I’d stop him and pull him away, try to hold him and restrain
him, he’d fight me until he got away and head straight for the tile
floor. Hopefully our days of head banging are going to be few and far
between, if not gone forever!
Although I say he’s pretty much back to where he was the middle of
February, there are some differences. With his speech, in February he
was saying entire statements when he combined words like, “Read a
book” or “There you go” (as he handed me his empty plate) now he is
missing connection words, but gets more main words such as, ”Mommy, come
help down chair” (when he needs me to help him down out of his chair).
He is using more variety in his language and can communicate just about
anything he wants to now! He’s even started with the, “Watch, Mommy” for
all his new (or not so new) feats. You may not realize why this phrase
is exciting. Not only is it great he has the language, it’s really great
because it means that he’s far enough away from me that I can “watch
him” since I’m not holding him, or more acurately, he’s not clinging to
me screaming like banchee every time I attempt to put him down. He’s
actually off on his own playing! Very exciting stuff! You just need to
know a few quirks like “strawberry” can mean “strawberry”, ”blueberry”,
“blackberry” or “raspberry”; “juice” could mean “juice” or “water”.
With his behavior, tantrums, fear, etc he is not quite back to where he
was in February, he’s still more moody and sullen, but in the last week
has made great strides in the direction of happiness and independence –
thanks to his cranial sacral treatment on Monday! It’s incredible to hear his
great belly laugh quite regularly!
I had been going to give the prescription anti-fungals one more try
so that he could get the LDA shot, but he has been doing so great off of
them and they affected him so severely we have decided to abandon that
line of treatment completely and go for a more natural route. We will
keep it in the back of our minds as a last resort should we need to come
back to it. Currently, we are giving him a rest this month, keeping up
his diet and cranial sacral appointments, and doing his brain therapy
exercises while we wait for the consult with the Pittsburgh doctor the
end of April. Oh, we did just start (this week) a new natural detox
supplement. So far we have seen good results (a
substantial increase of horribly stinkin’ poop which is great – that
means his body is getting rid of bad stuff) and no negative reactions!
So that’s the latest, thanks for keeping up and praying for Jordan and us!