Tuesday, December 30, 2008

Gluten-Free & Cranial Sacral

Jordan and Grandpa
So, we’ve been casein free since Jordan was 4 weeks old, but just went gluten free 2 weeks ago. We started his cranial sacral treatment at the same time, so I can’t say for sure which has made the difference, or they are both helping (my guess is they are both helping). And, guess what? Astounding things are happening!
In 3 weeks Jordan went from being in the 25th percentile on his height to being in the 50th percentile! Whoa!! (I think that growth is due to the cranial sacral work.) He went down in his weight – from the 10th to the 5th percentile. But, he did have the flu for an entire week and didn’t eat or nurse for 4-5 days. He lost all the weight I had worked for months to get on him. He was so skinny and scrawny BUT, in the last two weeks, since going gluten free, he looks like he has put back on all that weight and more. His belly looks pleasantly plump now instead of bloated!

And for the really great news: one month ago he couldn’t say Mama or Dada. On Christmas Day, I walked by him and said “Hi, Jordan”. He looked right at me and without hesitation replayed, “Hi, Mommy”!!!!! He had never put two words together before! The next day, my husband and I were in the kitchen and the boys were playing in the living room, Jordan starts wailing (a hurt-type of cry). I look in to see our older son near him and ask, “What happened?” no answer. Jordan toddles over to me for comfort. I look at our older son and again ask, “What happened?” And from Jordan I hear, “I fell down.” Astounded, I ask him, “Are you okay?” and he replies, “Uh-huh”. WOW!! His first sentence! Not only that, it’s the first time he’s ever said the words “I” or “fell” or “uh-huh”. In fact, it’s the first time he has ever referred to himself, and he used a pronoun! Also, it’s the first time he’s answered a question with an affirmative answer. WOW!

The next day (or night – actually), we are in the car traveling to Alabama. And I hear giggles from the backseat – and, no, my mind is not playing tricks on me – I glance in the rearview mirror to see the boys playing a hand game with each other (the only playing together they’ve ever done is “chase” consisting of Jordan chasing his older brother through the house, or big brother giving Jordan a wagon ride outside). They’ve never played a reciprocal game together before!! And then their hand game turned into another game! At one a.m. we told them it was time to go to sleep, but they were having so much fun together, we just couldn’t enforce it and let them play together until two a.m., when we finally stopped them and made them settle down and sleep!!!

I sat in the front seat teary-eyed for hours, counting my amazing blessings, overflowing with the joy of enjoying my children, knowing that Jordan is going to be just fine. A long road ahead, but it sure is nice to be getting to see more of his true personality and not the one altered by alleriges and health issues that we’ve been seeing all his life.

Why Gluten and Casein Free? Well, the reason for casein (dairy protein) is two-fold. The first is easy – he’s allergic to it. The second, (and there are two different theories on this, but this is one of them) and the reason we need to avoid gluten too, is that his body doesn’t break down the proteins properly or completely, resulting in partial proteins, called peptides, going into his blood and therefore, into his brain where it has an opiate effect. So, when he eats these, it’s like being on an LSD drug. Is it any wonder his speech was so delayed? And, long-term exposure can cause permanent brain damage. He is so young, it’s unlikely that there has been any permanent damage.

So, that’s our great news. The last month has contained so many amazing advancements I can’t even remember them all, let alone write them all down. And, we haven’t even started treatment through the autism/allergy specialist yet. We are still awaiting test results, so the treatment plan isn’t formed yet. That will come next week. Praise the Lord! Thank you for praying and caring!

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